'Flower Power for Parkinson's'
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Encouraging International Cooperation in Addressing PD
The affiliation signed November 4, 1994 formalized a working relationship between APDA and the Associazione Italiana Parkinsoniani (AIP). The expanded collaboration established an Electronic International Parkinson’s Disease Resource Guide with 13 initial participants, which has grown to become the 25-member World Parkinson Disease Association. AIP was begun by a small group of Italian Parkinsonians, caregivers, friends and medical professionals and grew to more than 3,000 members before the APDA-AIP agreement. Today the association has 23 offices across Italy and more than 25,000 members. It sponsors annual national conventions for patients and their families with participation by physicians, social workers, physiotherapists and psychologists as well as regional conventions and meetings. It also provides support groups, and raises public awareness to the importance of raising research funds. Most recently AIP established a Young Onset Parkinson’s Group in Italy, and the APDA signed an agreement of cooperation with the Young Onset Parkinson’s Association, an organization of more than 1,000 patients across the United States diagnosed under 50 years of age. In 1998 the World Parkinson’s Disease Association’s bylaws were registered in Milan, Italy, with the goals to improve the quality of life of Parkinson’s patients worldwide, broaden public awareness and contribute to the development and sharing of greater knowledge of Parkinson’s disease and to establish guidelines for a “continuum educational program” for patients. The organization also encourages standardization of diagnostic procedures and medical/surgical therapies, supports research, and established and maintain contacts with national and international organization aiming to promote the support of patients with Parkinson’s. APDA Young Parkinson's Information and Referral Center
If you are under age 50 and have Parkinson's disease, you are not alone. Thousands of young adults in the United States and around the world are living with Parkinson's disease. Like you, they're tackling the challenges of career, parenting and pursuing goals for the future. The American Parkinson Disease Association (APDA) is here for you. At the APDA Young Parkinson's Information and Referral Center our
mission is to provide you with accurate information and supportive resources to help you lead your life as fully as possible. We understand that whether you are newly diagnosed or if you have been living with the disease for years, having Parkinson's disease at a young age creates very particular issues, questions and concerns, such as: • Relationship issues with spouses, parents, children...
• Accurate and age-specific medical information from the experts
• Common psychological/emotional issues
• Career & financial planning for the long term
• Accurate and constructive news on current medical research
• Contact with other young people with PD
Visit the web site dedicated to the challenges of the young on-set patient, www.youngparkinsons.org
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